-
Are we there yet?…
0We are now (fingers, hair, toes, etc. crossed) done with the bad GVHD. Morgan is doing really well with her recovery. Some set backs with a small virus in her blood has us on a TON of pills, even more than before. With a second …
Read More -
Ready, Set, DRAW…
Guess who brought their pencil out!! Right now Morgan is drawing me a garden of flowers. We gauge Morgan’s mood and wellness with her ability to do Art. She has made a list of about 30 Art projects she would like to do when she …
Read More -
Mums the word…
This morning Morgan went into the ER for a procedure to alleviate the pain caused by the second/third degree burns on her skin. The doctors “popped” the large blisters trying to minimize infection which can be fatal for us. Morgan returned to her room kinda …
Read More -
Eyes Wide Open
Today Morgan was able to open her eyes…they have been swollen shut for the last 2-days. She is starting to talk a little more and is starting to try some food…I just came back from the market with her latest requests: macaroons, sliced peaches, drumstick …
Read More -
Time keeps on ticking…
Morgan’s not in good shape. Her skin is blistering with 2nd degree burns, and she is not able to move really at all without pain. We are HEAVILY medicating for the pain and the doctors are doing their best to kill off some of the …
Read More -
The way we were…
So we thought we were leaving today, but what we were last week, is not what we are today. Morgan’s numbers are great, but her GVHD has gotten quite bad. Her skin is beginning to blister, and the pain is quite serious. Thankfully we were …
Read More -
Click your heels 3 times…
So yesterday’s ANC was 4198…pretty fricking great! Her numbers and engraftment seems to be maintaining. The doctors want to lower the steroids to bring on the GVHD, which is what we want (to a lesser degree than 2 years ago), so that these new cells …
Read More -
The roof, the roof, the roof is on fire…
Morgan’s counts are staying strong. Her ANC 2-years ago were around the 400′s. Yesterday they were 2774 and today 2627…thru the roof! We are monitoring her rash and mold in lung with several medications. Next Morgan needs to start eating and drinking on her own. …
Read More -
Tracking Up
Well it’s been a turbulent week at the Inn. Morgan’s transplant is beginning to graft and she has been having a difficult time with coughs, nausea and pain. She has been in and out of some very high fevers all week long and the Nurses …
Read More -
Like watching paint dry…
Transplant/birthday was March 25th. I explained to Morgan that she was not going to have 3 Birthdays! This transplant cancelled out the last…she finally agreed. What we are doing now is waiting, waiting, waiting. We want a reaction called GVHD (graft vs host disease), but …
Read More