So, from what I can gather from the MINIMAL messages my daughter has been sending…she was in New York today for a road trip with the camp. They went to see the Broadway show Newsies…and I believe stopped off at the M&M’s store (that has …

Sooooo, haven’t heard a peep from Morgan. I heard from her counselor, Tova, that she was really enjoying the speed boats. Morgan did send me a one line text today letting me know the camp was taking all the girls into NYC on Tuesday…that was …

I dropped Morgan off at the bus for camp yesterday. She was so excited!! She texted me that one of her roommates is from LA, and loves art, just like her! Her counselor tells me that she is keeping VERY busy. So busy, that she …

Currently Morgan is taking art classes at Fleisher Art Memorial. Ups and downs with her fractured femur, but the doctors say it is starting to heal. Hoping that she will be able to go swimming come overnight camp time!! Her foot wound from October, has …

Morgan celebrated her 11th Birthday, June 23, with some of her friends viewing the movie Brave (appropriate I think), followed by lunch at her favorite restaurant, Cheesecake Factory. We go there so often, usually after a clinic day, the entire staff came out to sing …

Write this down…the hospital was on time today! They said 7:30am, and by g-d, we were taken at 7:20am! Barely had time to brush my teeth! So surgery went well. Removed 300cc’s of fluid, less than they believed based on the Echo. Should be out …

We are back in for an unexpected visit due to an increase of fluid around Morgan’s heart. Seems the fluid may have increased due to a med she is on called Rapamicin. More than likely we will be having the fluid removed tomorrow (what is …