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Flashes of Hope…
0We checked in today for the battle of, literally, our lives. The positive wishes and thoughts are truly felt and heard. It is a scary time, and Morgan is so strong, it’s hard not to be strong for her. My biggest fear for today, was …
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Tea for 2 (plus)…
For Morgan’s last day “out”, we threw together a quick tea with some of her friends at my old haunt, The Bellevue. Fun was had by all, and the girls behaved so well, I may just have to do that again…especially the cocktails …
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Just me and the gals…
Good day yesterday! Morgan had a great day at school, and had some Sundaes on Monday with some of her girlfriends. Her nanny said that it was a great hour of sugar highs, and then the crash occurred, and it was time to head home. …
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O.M.G…I am tooooo old for this…
Had the LP on Thursday, went great. Morgan woke up, asked for food, and had 4 spare ribs and a pack of pringles! The nursing staff said they had never seen anything like it. We then went on to radiology to get ready for next …
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Good to the last drop…
Met with the Bone Marrow Transplant team last week. So much information, and for me, a lot scary. It seems that with leukemia, we do not have the luxury of time to find a “perfect” match for the bone marrow donor. Our donor is an 80% …
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Life’s a beach…
So the city was over 90 degrees this past weekend. That would usually mean that the Jersey Shore would be about 10 – 15 degrees cooler. I say usually, because Murphy’s law decided to join us for the day, and the Jersey …
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Just breathe….
Lungs are good. Morgan had a good time with the test, she was a real trooper. The facilitator had to remind me that there was only one person that should be giving Morgan instructions on how to breathe thru the test – and it wasn’t …
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Always be prepared…
For the next few weeks, we will be preparing for Morgan’s transplant. We have seen the eye doctor, dentist, cardiologist. We are seeing the pulmonary specialist today and will be getting a CAT scan in the next week. Morgan will check in on May 13, …
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Love, Set, MATCH…
I hesitate to put this in writing…I mean, I wrote remission once, and then found out we were not. However, we were just informed by the oncology team that Morgan DOES have a MATCH. We check in May 13 for …
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