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My Blog

  • Please pass the salt…

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    My goodness, this girl can EAT!  Morgan now wakes up quite early, and fixes herself a bowl of cereal for her  first of a dozen courses for the day.  Once my eyes open, she can have me cook something for her.  Right now she is loving …

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  • What happens in Vegas…

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    OK, not Vegas, but Atlantic City.  It was my birthday this past weekend, and because Morgan was doing so well, I was able to slip away for a couple of days with some friends.  I am way too old to stay out until 3am two …

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  • Recovery!

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    Well it’s time for an update!  Apologies for the delay, the fourth of July weekend was a whirlwind to say the least.  Morgan again, true to form, gets out of the hospital early, on Thursday instead of Friday because she is doing so well.  The …

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  • Tansformation

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    Round one and Morgan takes a major blow from GVHD, but comes back strong in second, and round three is proving to be hers!  Yes, she’s done it again!  In true Morgan fashion she now seems to have the upper hand, and is making great …

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  • Happy Birthday Morgan!

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    Happy Birthday Morgan! Tuesday June 23rd was Morgan’s 8th birthday which we celebrated in the Hospital.  It was bittersweet because Morgan was still having great difficulty with the pain, and depression caused by her GVHD flare-up but still tried to enjoy it the best she …

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  • Back in the saddle again…

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    We checked back into the hospital today.  Morgan’s pain management became too much to handle at home.  Her skin rash is quite bad on her face, feet, hands, and lower extremities.  It looks and feels like 2nd degree burns. The sores are in her throat as …

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  • Don’t be rash…

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    So, taking it one day at a time.  What is called GVHD (graft versus host disease) has struck on Morgan’s skin, in the form of a very nasty rash.  We want some GVHD, because, well, something about it meaning that her body knows that something …

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  • Testing the waters…

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    So we have been out of the hospital since Tuesday afternoon.  Of course by Tuesday evening, Morgan had already had a playdate with Maxine and Ocean!  Having some difficulty sleeping thru the evenings, due to some GVHD (this a a good thing when it is …

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  • Click your “heals” 3 times…

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    Sorry you are just hearing the news on the blog today.  Out celebrating yesterday.  Yup, typical Morgan.  Doctors came in yesterday and told her dad that as long as she posts no fever over the weekend, we are home on Tuesday!  420 ANC with 100 …

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  • Take me out to the Ball Game…

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    The well wishes paid off, as Morgan’s Dad’s blog shows!  See the Newsletter from St. Peter’s below: When Mrs. Moore (Prekindergarten Teacher) and Mrs. Seltzer (Early Childhood Division Director) took their Prekindergaten friends, Mason Siegel and Drew Cohen, to the Phillies game on May 31, …

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