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So we received a good report from the doctors today at clinic.  The steroids are being reduced a little more.  We’ve lost (OK, Morgan, not me) 2 pounds, but are still quite hungry.  The doctor asked Morgan how her rash was, and Morgan asked “What …

Doctor’s check-up went great yesterday.  Our numbers had dropped some last week, but the doctors felt that the changes in medications may have caused that to happen.  This week, her numbers are on the rise again, so that means her body is fixing itself.  What …

Still eating me out of house and home.  Current menu items are HOMEMADE mashed potatoes and Ribeye steak…every day for the last 6 days! Mornings and night!!!  Morgan did want me to let you know that she has started to excersize.  We walk about 10 …

My goodness, this girl can EAT!  Morgan now wakes up quite early, and fixes herself a bowl of cereal for her  first of a dozen courses for the day.  Once my eyes open, she can have me cook something for her.  Right now she is loving …

OK, not Vegas, but Atlantic City.  It was my birthday this past weekend, and because Morgan was doing so well, I was able to slip away for a couple of days with some friends.  I am way too old to stay out until 3am two …

We checked back into the hospital today.  Morgan’s pain management became too much to handle at home.  Her skin rash is quite bad on her face, feet, hands, and lower extremities.  It looks and feels like 2nd degree burns. The sores are in her throat as …

So, taking it one day at a time.  What is called GVHD (graft versus host disease) has struck on Morgan’s skin, in the form of a very nasty rash.  We want some GVHD, because, well, something about it meaning that her body knows that something …

So we have been out of the hospital since Tuesday afternoon.  Of course by Tuesday evening, Morgan had already had a playdate with Maxine and Ocean!  Having some difficulty sleeping thru the evenings, due to some GVHD (this a a good thing when it is …

Sorry you are just hearing the news on the blog today.  Out celebrating yesterday.  Yup, typical Morgan.  Doctors came in yesterday and told her dad that as long as she posts no fever over the weekend, we are home on Tuesday!  420 ANC with 100 …

The well wishes paid off, as Morgan’s Dad’s blog shows!  See the Newsletter from St. Peter’s below: When Mrs. Moore (Prekindergarten Teacher) and Mrs. Seltzer (Early Childhood Division Director) took their Prekindergaten friends, Mason Siegel and Drew Cohen, to the Phillies game on May 31, …