Archives

Today Morgan was able to open her eyes…they have been swollen shut for the last 2-days. She is starting to talk a little more and is starting to try some food…I just came back from the market with her latest requests: macaroons, sliced peaches, drumstick …

Morgan’s not in good shape. Her skin is blistering with 2nd degree burns, and she is not able to move really at all without pain. We are HEAVILY medicating for the pain and the doctors are doing their best to kill off some of the …

So we thought we were leaving today, but what we were last week, is not what we are today.  Morgan’s numbers are great, but her GVHD has gotten quite bad.  Her skin is beginning to blister, and the pain is quite serious.  Thankfully we were …

So yesterday’s ANC was 4198…pretty fricking great! Her numbers and engraftment seems to be maintaining. The doctors want to lower the steroids to bring on the GVHD, which is what we want (to a lesser degree than 2 years ago), so that these new cells …

Morgan’s counts are staying strong. Her ANC 2-years ago were around the 400′s. Yesterday they were 2774 and today 2627…thru the roof! We are monitoring her rash and mold in lung with several medications. Next Morgan needs to start eating and drinking on her own. …

Transplant/birthday was March 25th. I explained to Morgan that she was not going to have 3 Birthdays! This transplant cancelled out the last…she finally agreed. What we are doing now is waiting, waiting, waiting. We want a reaction called GVHD (graft vs host disease), but …

So we checked in last week to get ready for transplant. Due to already having radiation, we are not able to do that again. Therefore we are on 3 different types of chemo, and tons of meds. She has already completed two of the three …

Back from Disney…and I need a vacation!  Morgan had a B L A S T!!!  What you did not know behind the scenes, was that we were told after I booked the trip, that we might not be able to go to Disney.  I decided …

Dear Friends and Family, Once again, I will be shaving my head to raise money for childhood cancer research.  This will be my third year in a row raising money for this amazing cause. This year I will be joined by friends who will also …