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Had the LP on Thursday, went great.  Morgan woke up, asked for food, and had 4 spare ribs and a pack of pringles!  The nursing staff said they had never seen anything like it.  We then went on to radiology to get ready for next …

Met with the Bone Marrow Transplant team last week. So much information, and for me, a lot scary.  It seems that with leukemia, we do not have the luxury of time to find a “perfect” match for the bone marrow donor.  Our donor is an 80% …

          So the city was over 90 degrees this past weekend.  That would usually mean that the Jersey Shore would be about 10 – 15 degrees cooler.  I say usually, because Murphy’s law decided to join us for the day, and the Jersey …

Lungs are good.  Morgan had a good time with the test, she was a real trooper.  The facilitator had to remind me that there was only one person that should be giving Morgan instructions on how to breathe thru the test – and it wasn’t …

For the next few weeks, we will be preparing for Morgan’s transplant.  We have seen the eye doctor, dentist, cardiologist.  We are seeing the pulmonary specialist today and will be getting a CAT scan in the next week.  Morgan will check in on May 13, …

So, Morgan is in school this week – Hallelujah!  I know all the mom’s out there know what I mean!  Anyway, they are learning about probabilities in Math.  The question was “What is the probability that you will have more than one birthday a year?”  …

           I hesitate to put this in writing…I mean, I wrote remission once, and then found out we were not.  However, we were just informed by the oncology team that Morgan DOES have a MATCH.  We check in May 13 for …

The Donor Drive was an amazing success! Thank you so much to Friends Select and all who volunteered and participated. The total registered amount was 108!!! I was told by Ms. Claypool that this was way more than the National Donor Program anticipated. It seems …

Reminder – tomorrow is the bone marrow drive at Friends Select at 16 & Race.  The hours are from 2p – 6p in the PA room.  If you can make it, we truly appreciate your help.  The phone number for the school is 215-561-5900 for …

First invoice in since Morgan’s diagnosis, which is for Nov 24 – Dec 29: Room & Board: $95,132 Core Lab: $50,196 (I have no idea what this is) Pharmacy Services: $46,375.07 IV Solutions: $18,527 various other fees for a GRAND TOTAL of $293,641.07 INSURANCE:  PRICELESS With …